EP 88: Surviving Locked In Syndrome: The Jake Haendel Story - Part 1

Part 1

Jake Haendel, the only known survivor of stage four Locked-In Syndrome, joins the Nurses Uncorked Podcast to share an unbelievable story of survival, addiction, and a miracle recovery. Acute Toxic Progressive Leukoencephalopathy (ATPL) is a complex rare neurological condition that attacks the white matter of the brain. Sometimes referred to as a pseudo-coma, it has been described as your body becoming a prison. Jake discusses the awkward moments he overheard while in a locked-in state, the significance of nurses' interactions, and his journey to regaining communication. The conversation emphasizes the need for healthcare professionals to maintain awareness of their patients' potential perceptions and the impact of their words and actions. In this conversation, he shares his profound experiences with isolation, trauma, and recovery, emphasizing the importance of humor, positivity, and resilience. Additionally, Jake introduces his accessibility app, Ahoi, designed to help disabled individuals navigate public accessibility. The discussion concludes with insights into his podcast, Blink, where he plans to share his full story and the challenges he faces during his recovery. 

Join us next week for part two! 

 

Thank you to our sponsor, Nurses Against Insanity! Please visit: nursesagainstinsanity.com and use promo code UNCORKED for 30% off your purchase! 

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Chapters:

03:33 Introduction to Locked-In Syndrome

04:47 Cocktail of the Week

07:58 Understanding Locked-In Syndrome

10:00 Jake's History of Drug Abuse

13:49 The Day Everything Changed

22:40 Receiving the Terminal Diagnosis

28:10 The Experience in the Hospital

37:17 Patient Perception and Awareness

39:30 The Nurse Who Made a Difference

41:50 Near-Death Experiences and Insights

48:25 Tracking Time While Locked-In

52:20 The Role of Entertainment in Recovery

55:58 The Importance of Communicating with Patients

58:37 Enema of the Week Award

1:01:21 The Worst Enema Story

 

Help support Jake Haendel's recovery:

https://www.gofundme.com/f/jacob-haendels-recovery-fund 

 

Connect with Jake Haendel:
Instagram: @miraclman31. https://www.instagram.com/miraclman31/# 

Tiktok: @miraclman31. https://www.tiktok.com/@miraclman31 

YouTube: @miraclman31. https://www.youtube.com/@miraclman31 

 

Blink | Jake Haendel Story Podcast: 

https://www.blinkthepodcast.com/ 

 

https://podcasts.apple.com/us/podcast/blink-jake-haendels-story/id1779813806 

 

https://open.spotify.com/episode/1f8xqkipaynS2uqYJp1lUM?si=J9Cxj91_SJ6tZ06FQBKplQ 

 

Instagram: @blinkthepodcast https://www.instagram.com/blinkthepodcast/?igsh=MW11dGRoeXhjamozbw%3D%3D&utm_source=qr# 

 

Ahoi App:
https://apps.apple.com/us/app/ahoi/id1629306597 

Cocktail of the Week:

Fat Clouds Beer by Arkane Aleworks

https://www.arkanebeer.com/product/fat-clouds-2/ 

 

Sources:

CBS Sunday Morning Interview:  https://www.youtube.com/watch?v=tFVpFyj0570 

https://www.sciencedirect.com/science/article/abs/pii/S0022510X22002829 

https://pmc.ncbi.nlm.nih.gov/articles/PMC7028629/ 

 

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